Several families have shared their stories so that others can have a better understanding of the daily
challenges, the barriers, and the sources of information and support that they have found. Several of the families
are willing to share their stories with providers, the media, and with other families. To contact any of the
families concerning their personal story, click here, put "attn family" in the
subject line, and create your message.
Down Syndrome
Kim's story
Neurofibromatosis
Zoe's story
Congenital Adrenal Hyperplasia
April's story
